The full archive
Writing on medicine and ethics.
2018
- Pediatric Participation in Medical Decision Making: Optimized or Personalized? · Maya Sabatello, et al.The American Journal of Bioethics
- Recommendations for the design of therapeutic trials for neonatal seizures · Janet S. Soul, et al.Pediatric Research
- When Parents Have Misunderstandings About the Risks and Benefits of Palliative Surgery · Berklee Robins, Adam BooserPEDIATRICS
- Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies. · Johnston J, et al.The Hastings Center report
- Please Test My Child for a Cancer Gene, but Don't Tell Her. · Bester J, et al.Pediatrics
- When a Child Needs a Transplant but Lacks Familial Social Support · Hilary Mabel, et al.PEDIATRICS
- Prenatal AnxietiesImperfect Pregnancies: A History Of Birth Defects And Prenatal Diagnosis By Ilana Löwy Baltimore (MD): Johns Hopkins University Press, 2017 296 pp., $44.95Health Affairs
- Should Foreigners Get Costly Lifesaving Treatments in the United States? · Shane R. Wo, et al.PEDIATRICS
- Should Pediatric Euthanasia be Legalized? · Marije Brouwer, et al.PEDIATRICS
- Fragile lives with fragile rights: Justice for babies born at the limit of viability. · Hendriks MJBioethics
- Neonatal research ethics after SUPPORT.Seminars in fetal & neonatal medicine
- When a Mother Changes Her Mind About a DNR. · Higginson J, et al.Pediatrics
- What is the Purpose of Antenatal Counseling?The Journal of Pediatrics
2017
- Ethical Controversy About Hysterectomy for a Minor. · Burgart AM, et al.Pediatrics
- Religious Traditions in a Postreligious World:Unknown Journal
- Physician-Nurse Interactions in Critical Care. · Khowaja-Punjwani S, et al.Pediatrics
- Neonatal research ethics after SUPPORTSeminars in Fetal and Neonatal Medicine
- Controversy About Dialysis for an Adolescent. · Tate T, et al.Pediatrics
- Ethical Concerns When Minors Act as Standardized Patients · Erwin Jiayuan Khoo, et al.PEDIATRICS
- What We Do When We Resuscitate Extremely Preterm Infants. · Garrett JR, Carter BSThe American journal of bioethics : AJOB
- A Parent Reveals the Biases That she Faced to get Care for her Daughter. · Chaney SCurrent problems in pediatric and adolescent health care
- The Tragic Case of Charlie Gard.JAMA pediatrics
- A Novel Partnership Disrupts the Norm in Early Childhood Education and Pediatric Health Care · M. Denise DowdCurrent problems in pediatric and adolescent health care
- Newborn Sequencing in Genomic Medicine and Public Health · Jonathan S. Berg, et al.PEDIATRICS
- Palliative Sedation With Propofol for an Adolescent With a DNR Order. · Johnson LM, et al.Pediatrics
- Informed Consent for Comparative Effectiveness Research Should Not Consider the Risks of the Standard Therapies That Are Being Studied as Risks of the ResearchThe Journal of Law Medicine & Ethics
- Grief and Burnout in the PICU · Suzanne M. Crowe, et al.PEDIATRICS
- Surrogate Pregnancy After Prenatal Diagnosis of Spina Bifida · Lynnette J. Mazur, et al.PEDIATRICS
- Contributors · Kabir Abubakar, et al.Elsevier eBooks
- Physician views regarding the benefits and burdens of prenatal surgery for myelomeningocele. · Antiel RM, et al.Journal of perinatology : official journal of the California Perinatal Association
- Weighing the Social and Ethical Considerations of Maternal-Fetal Surgery · Ryan M. Antiel, et al.PEDIATRICS
- Ethics Rounds: Parents Refusing Dialysis for a 3-month-old with Renal Failure · Laurel K. Willig, et al.PEDIATRICS
- Why Are There So Few Ethics Consults in Children’s Hospitals? · Brian S. Carter, et al.HEC Forum
- Genomic Contraindications for Heart Transplantation. · Char DS, et al.Pediatrics
- The Dilemma of Predicting Violent Radicalization. · Rousseau C, Ellis BHPediatrics
- Cross-Cultural Differences in Communication About a Dying Child. · Cochran D, et al.Pediatrics
- Treatment Decisions for Babies with Trisomy 13 and 18 · Isabella K. PallottoHEC Forum
- Trust in the Medical Profession Among Adolescents in an Emergency Department · Kelstan Ellis, et al.Pediatric Emergency Care
- The regulation of clinical research: What's love got to do with it?Learning Health Systems
- Specialty-Based Variation in Applying Maternal-Fetal Surgery Trial Evidence. · Antiel RM, et al.Fetal diagnosis and therapy
- Ethics Rounds: Death After Pediatric Dental Anesthesia: An Avoidable Tragedy? · Helen Lee, et al.PEDIATRICS
- Considering Family Resources When Making Medical Recommendations · Arpana Iyengar, Sanjiv LewinPEDIATRICS
- Blowing the whistle: moral distress and advocacy for preterm infants and their families · Annie Janvier, Trisha PrenticeActa Paediatrica
- To Whom Do Children Belong?The American Journal of Bioethics
- Prognostic neurodevelopmental testing of preterm infants: do we need to change the paradigm? · Howard W. Kilbride, et al.Journal of Perinatology
- Ethical Issues in Assisted Ventilation of the Neonate · Julie Weiner, Jessica BrunkhorstElsevier eBooks
2016
- Neonatologists’ opinions about the ‘foreseeable risks’ in comparative effectiveness research: Results from an online survey · Dalia M. FeltmanJournal of Perinatology
- Introduction to Bioethics Special Supplement V: Ethical Issues in Genomic Testing of Children.Pediatrics
- Dying Children and the Kindness of StrangersOxford University Press eBooks
- Should Neonatologists Give Opinions Withdrawing Life-sustaining Treatment? · J. S. Blumenthal‐Barby, et al.PEDIATRICS
- Trisomy 13 and 18--Treatment Decisions in a Stable Gray Zone.JAMA
- Thirteen Ways of Looking at Henrietta LacksPerspectives in biology and medicine
- Medical Therapy for Inappropriate Sexual Behaviors in a Teen With Autism Spectrum Disorder · Loyal Coshway, et al.PEDIATRICS
- Editors’ Introduction · Franklin G. MillerPerspectives in biology and medicine
- Withholding Information to Protect a Loved One. · Kilbaugh TJ, et al.Pediatrics
- Neonatal End-of-Life Care and Parental Grief · Jessica Brunkhorst, et al.PEDIATRICS
- Delivery room practices for extremely preterm infants: the harms of the gestational age label · Annie JanvierArchives of Disease in Childhood Fetal & Neonatal
- Ethics Rounds: In the Eye of a Social Media Storm. · McKlindon D, et al.Pediatrics
- When a Surgical Colleague Makes an Error · Ryan M. Antiel, et al.PEDIATRICS
- Henry K. Beecher and the Oversight of Research in ChildrenPerspectives in biology and medicine
- Considering Decision-Making and Sexuality in Menstrual Suppression of Teens and Young Adults with Intellectual Disabilities. · Acharya KAMA journal of ethics
- Please Do Whatever It Takes to End Our Daughter's Suffering! · Clément de Cléty S, et al.Pediatrics
- Can Parents Refuse a Potentially Lifesaving Transplant for Severe Combined Immunodeficiency? · Andrew S. Nickels, et al.PEDIATRICS
- Bartleby in the NICUThe Hastings Center Report
- Reason, Emotion, and Implanted Devices.The American journal of bioethics : AJOB
- Should Pediatric Practices Have Policies to Not Care for Children With Vaccine-Hesitant Parents? · Kenneth Alexander, et al.PEDIATRICS
- One Exemption Too Many: The Case for Mandated CCHD Screening. · Caciki J, Garrett JRThe American journal of bioethics : AJOB
- Tough Decisions for Premature Triplets. · Hurst A, et al.Pediatrics
- Learning to Listen, Listening to LearnThe Hastings Center Report
- Ethical Issues in End Stage Kidney Disease (ESKD)Unknown Journal
- The Challenge of Analyzing the Results of Next-Generation Sequencing in Children · Isabelle ThiffaultPEDIATRICS
- A survey of paediatricians on the use of electrocardiogram for pre-participation sports screening · Angira Patel, et al.Cardiology in the Young
- Should School Boards Discontinue Support for High School Football? · Lewis H. Margolis, et al.PEDIATRICS
- Stronger and More Vulnerable: A Balanced View of the Impacts of the NICU Experience on Parents · Annie Janvier, et al.PEDIATRICS
- Islamic American doctors and premature babies · Ayman KhmourActa Paediatrica
- What If the Prenatal Diagnosis of a Lethal Anomaly Turns Out to Be Wrong? · André Kidszun, et al.PEDIATRICS
- Parental Refusal of Surgery in an Infant With Tricuspid Atresia · Alexander A. Kon, et al.PEDIATRICS
- University of Pennsylvania 8th annual conference on statistical issues in clinical trials: Pragmatic clinical trials (morning panel). · Dodd LE, Pinheiro JClinical trials (London, England)
- Randomized n-of-1 Trials: Quality Improvement, Research, or Both? · Samuel JP, et al.Pediatrics
2015
- Author's Response.Pediatrics
- Making Tough Ethical Choices in a Morally Pluralistic WorldInternational library of ethics, law, and the new medicine/The international library of ethics, law, and the new medicine
- SUPPORT and the Ethics of Study Implementation: Lessons for Comparative Effectiveness Research from the Trial of Oxygen Therapy for Premature Babies. · Feudtner CThe Hastings Center report
- Should All Deaf Children Learn Sign Language? · Donna Jo Napoli, et al.PEDIATRICS
- U.S. Research Regulations: Do They Reflect the Views of the People They Claim to Protect?Annals of Internal Medicine
- Considerations in the evaluation and determination of minimal risk in pragmatic clinical trials · et al.Clinical Trials
- Please Do Whatever It Takes to End Our Daughter’s Suffering! · Stephan Clément de Clety, et al.PEDIATRICS
- Preterm Babies, Fetal Patients, and Childbearing Choices · Diane S. LauderdaleThe MIT Press eBooks
- When a Family Requests a White Doctor. · Reynolds KL, et al.Pediatrics
- Do Patients Want to Participate in Decisions About Their Own Medical Care?The American Journal of Bioethics
- Author's Response: Deaf Children, Cochlear Implants, and Language Acquisition.Pediatrics
- Use of altered informed consent in pragmatic clinical research · Ross E. McKinney, et al.Clinical Trials
- Risks in a Trial of an Innovative Treatment of Duchenne Muscular Dystrophy. · Bos W, et al.Pediatrics
- Is a New Protocol for Acute Lymphoblastic Leukemia Research or Standard Therapy? · Sara A. S. Dekking, et al.PEDIATRICS
- Harmonization and streamlining of research oversight for pragmatic clinical trials · P. Pearl O’Rourke, et al.Clinical Trials
- 136. Do Adolescents Trust Doctors? · Melissa K. Miller, et al.Journal of Adolescent Health
- Bullying, Social Hierarchies, Poverty, and Health Outcomes · Jodi HalpernPEDIATRICS
- Two infants, same prognosis, different parental preferences. · Antommaria AH, et al.Pediatrics
- ChildrenThe MIT Press eBooks
- Frontiers: Integration of a Research Participant Registry with Medical Clinic Registration and Electronic Health Records · Patricia M. Kluding, et al.Clinical and Translational Science
- Muddled Measures of Risks and Misremembered Reasons · Chris FeudtnerThe Hastings Center Report